National Lupus Training, Outreach, and Clinical Trial Education Program (Lupus Program)
The Lupus Program aims to eliminate health disparities among racial and ethnic minority populations and disadvantaged populations disproportionately affected by lupus and improve the participation of minority populations in clinical trials.
OMH expects the National Lupus Training, Outreach and Clinical Trial Education Program (Lupus Program) will accomplish the following two goals:
- Priority A: Develop and increase the number of public- private and community partnerships with culturally and linguistically education and participation programs to promote recruitment and enrollment
- Priority B: Develop and increase the number of innovative and effective provider education models that improve attitudes and practices of health care providers and paraprofessionals
Lupus Program projects begin July 2018 and end June 2020.
| City | State | Priority | Funding Level | |
| American College of Rheumatology | Atlanta | GA | A | $374,976 |
| Northwestern University | Evanston | IL | A | $375,000 |
| American College of Rheumatology | Atlanta | GA | B | $500,000 |
| Oklahoma Medical Research Foundation | Oklahoma City | OK | B | $500,000 |
| Total: $1,749,976 | ||||
National Lupus Outreach and Clinical Trial Education Program (Lupus Program)
The Lupus Program seeks to reduce lupus related health disparities among racial and ethnic minority populations disproportionately affected by this disease by: (1) implementing a national health education program on lupus, and (2) developing, piloting and assessing clinical trial education interventions for health care providers and paraprofessionals focusing on improving recruitment and retention rates in clinical trials for racial and ethnic minority populations affected by lupus.
Lupus Program projects begin July 2017 and end June 2018.
| City | City | State | Funding Level |
| American College of Rheumatology | Atlanta | GA | $525,000 |
| National Association of State Offices of Minority Health | Indianapolis | IN | $300,000 |
| New Jersey Chapter, American Academy of Pediatrics | East Windsor | NJ | $325,000 |
| Northwestern University | Evanston | IL | $325,000 |
| Oklahoma Medical Research Foundation | Oklahoma City | OK | $525,000 |
| Total: $2,000,000 | |||
National Health Education Lupus Program (NHELP)
| Priority A Grantees | City | State | Funding Level |
| American College of Rheumatology | Atlanta | GA | $335,000 |
Association of State and Territorial Directors of Health Promotion and Public Health Education | Washington | DC | $329,946 |
| National Alliance for Hispanic Health | Washington | DC | $334,905 |
| Total: $999,851 | |||
| Priority B Grantee | City | State | Funding Level |
| Lupus Foundation of America | Washington | DC | $997,962 |
| Total for all grantees: $1,997,813 | |||
The purpose of the National Health Education Lupus Program (NHELP) is to reduce lupus-related health disparities among racial and ethnic minority and/or disadvantaged populations disproportionately affected by this disease under two priority initiatives:
- Priority A: to conduct a national health education program on lupus to increase and improve awareness, diagnosis, and treatment outcomes for individuals living with lupus,
- Priority B: to develop and begin implementing an education program on clinical trials that educates and recruits minorities and/or disadvantaged populations, particularly groups underrepresented in clinical research.
The NHELP initiative will support three grantee programs under Priority A that will aim to increase: (1) the number of health professionals and student trainees who are knowledgeable and skilled in the diagnosis and treatment of lupus, (2) the number of health professionals with enhanced knowledge and expertise in the signs and symptoms of lupus, treatment adherence, and screening, (3) the number of people who are aware of the disease and knowledgeable about its symptoms and warning signs, and (4) the number of providers that use culturally and linguistically appropriate lupus materials to disseminate information to patients and families, including educational and multi-media materials.
NHELPwill support one grantee program under Priority B to develop and begin implementing an education program on clinical trials that educates and recruits minorities and/or disadvantaged populations, particularly groups underrepresented in clinical research.
NHELP will help facilitate the development of a structure for involvement, and regular engagement of, community and partnering organizations in the design and review of strategies, tools, resources, and approaches needed to carry out this initiative. Community and partnering organizations will reflect a wide range of health partners, including minority health professional associations, medical and nursing professional associations, medical and nursing schools, schools of allied health professions, and health care organizations.
This program begins July 1, 2016 and ends June 30, 2017.
National Health Education Program on Lupus (NHEPL)
The National Health Education Program on Lupus (NHEPL) is intended to reduce lupus-related health disparities among racial and ethnic minority populations disproportionately affected by this disease by conducting a national lupus education initiative that includes the general public, health professionals and student trainees in targeted communities, schools, and health care systems and practices. The NHEPL targets individuals, patients and their families, communities, and practicing professionals in geographic areas and populations where lupus is more prevalent. NHEPL projects began August 1, 2015 and will end July 31, 2016.
| Grantees | City | State | Funding Level |
| American College of Rheumatology | Atlanta | GA | $500,000 |
| ASTDHPPHE (Association of State and Territorial Directors of Health Promotion & Public Health Education) | Washington | DC | $500,000 |
| Lupus Research Institute, Inc. | New York | NY | $499,730 |
| Northwestern University | Evanston | IL | $488,949 |
| Total: $1,988,679 | |||
National Health Education Program on Lupus for Healthcare Providers (NHEPLHP)
NHEPLHP is a collaboration between the Office of Minority Health, in collaboration with the Office on Women’s Health and the Office of the Surgeon General, to promote lupus diagnosis and treatment. This initiative continued the national health education program on lupus for health care providers, with the goal of improving diagnosis for those with lupus and reducing health disparities. The program was intended to engage health care providers, educators and health professions schools in working together to improve lupus diagnosis and treatment through education. The goal of the NHEPLHP is to support the development and dissemination of a national lupus health education program to improve diagnosis and treatment for persons with lupus and to reduce health disparities in target populations. The NHEPLHP targeted practicing physicians, nurses and other allied health professionals, and medical, nursing and other allied health students in training. This program ended August 31, 2015.
| Non-Federal NHEPLHP Grantee | City | State | Funding Level |
| American College of Rheumatology | Atlanta | GA | $2,000,000 |
Eliminating Lupus Health Disparities Initiative
This initiative focuses on dissemination of a national lupus education program to health professionals and student trainees in targeted schools and health care systems/practices. This program ended August 31, 2014.
| Grantee | City | State | Funding Level |
|---|---|---|---|
| American College of Rheumatology | Atlanta | GA | $1,000,000 |
Last Edited: 09/05/2024